A true passion for disabled persons
National Trust for the welfare of Persons with Autism, Cerebral Palsy, Mental Retardation & Multiple Disabilities is a statutory body under the Ministry of Social Justice & Empowerment, Government of India, set up under the National Trust for the welfare of persons with Autism, Cerebral Palsy, Mental Retardation and Multiple Disabilities” Act (Act of 1999). The main objectives of this trust is to ensure PWD5 to lead Independent Life with Dignity, to support & strengthen NGOs & other service providers and to appoint Legal Guardian to take care the needs of PWDs. National Trust has been able to develop a network of around 750 voluntary organizations across the country (except J&K) through which most of the programmes and activities are implemented. These organizations are registered with the National Trust and provide the basic structure at the grass root level and also at the district and state levels.
To implement all the schemes and programme of National Trust and coordinate with various state Govt. Departments, a State Nodal Agency Center (SNAC) has been set up in States. Presently there are 31 SNACs in all over the country. Under the National Trust Act, a Local Level Committee is required to be constituted in every district of the country for a period of three years. This Committee has been instructed to involve Civil Surgeon, District Welfare Officer (looking after disability) and a senior local lawyer as co-opted members so as to strengthen the activities of LLCs in terms of Disability certification, appointment of legal guardians & organising regular meetings. LLCs are also advised to constitute sub-committees to improve its functioning / field visits and other activities etc.
Following are some Schemes & Programmes implemented by National Trust.
Niramaya (Health Insurance) Scheme It is a health insurance scheme for persons with Autism, CerebraI PaIsy, and Mental Retardation & Multiple Disabilities. The Scheme was launched in 2007 on a pilot basis for two years in 1o selected districts of 1o States but due to huge popular demand the same was soon extended to cover the entire country (except J&K). Under the Scheme, health insurance coverage of Rs. 1.0 lakh is available, at the doorstep of persons with disabilities.
The scheme provides insurance coverage of upto Rs. 1 Lakh for a range of medical services from OPD treatment to hospitalization. There is a nominal fee of Rs. 250/- per annum for family income up to Rs. 15,000/-per month and Rs.5oo/- for others, having income above Rs. 15,000/- per month. Enrolment under the scheme is being done online by all Registered Organizations of National Trust.
Sahyogi — Care Givers Training &Deployment Scheme
Under the scheme, Care Givers Cell (CGCs)have been set up in selected NGO centers across the country to provide Care Givers Training Program by trained professionals. The training of these professional known as ‘Master Trainers’ are being conducted in Delhi in batches.
Association for Rehabilitation under National Trust Initiative of Marketing
(ARU NI M)
ARUNIM is a path breaking initiative of National Trust. It operates as an independent Marketing Channel for persons employed in sheltered/supported work environments by facilitating skill development, innovative product design and development, adaptations and mechanization wherever appropriate and feasible. The mission of the ARUNIM is to facilitate enterprises that can offer products and services to cater to the domestic and overseas markets, while ensuring self-sustenance and equality especially for people with developmental disabilities.
Sambhav — National Resource Centre
Sambhav-a National Resource Centre for persons with disabilities has been established in Delhi which showcases various ways in which the principles of universal design can be applied in different areas of life like communication (enhancing listening, understanding and alternative modes of communication); learning (play, concept teaching and self-learning); movement (transfers, supported walking, alternative methods of mobility, and outdoor travelling); etc. Various technologies developed in the country have been placed together at one place so that all the users have access and they get information about different kind of aids & appliances and software’s etc. It provides facilities for demonstrations and experiencing practical usage of the displayed items by persons with disabilities and for others.
The address and contact detail of Sambhav Center in Delhi is as under:
Action for Ability Development and Inclusion
2, Balbir Saxena Marg, Hauz Khas, South Delhi, New Delhi
(NearHauz Khas metrostation)
Contact person: Ms. Manuja Mishra/ Mr.VinayVij
Aspiration Scheme & Early intervention activities
Aspiration — Early Intervention Program (Day Care Centre) Scheme was launched in 2007-08 for 6 years period. The objective of the scheme is to train children up to o-6 age group and their parents on management of disability and School Readiness. The scheme is being run at 79 places in the country. In addition, training programs on Early Intervention techniques are being conducted at several places in the country in collaboration with Voice & Vision, Mumbai on Multiple Disabilities and Comm DealTrust on Autism.
To further expand the program and its coverage in all parts of the country, National Trust in its Strategic Plan of 2012-17 has decided that all Registered Organizations of National Trust (ROs) will work as Early Intervention Centers. A physical target of assessment and training of 50,000 children and their parents have been made during the year’s period.
To implement this, National Trust has been taking a number of initiatives and has framed an integrated course module covering all the areas of developmental and intellectual disabilities. It has also been decided to prepare a panel of Master Trainers who can be used as Resource Persons for training the Registered Organizations of National Trust. These organizations will set up Early Intervention Units in Government hospitals.
Samarth (Residential Care Scheme) The main objective of the scheme is to provide safety net to families in crisis. The scheme provides both short term and long term stay facilities for adults and destitute children. There are 119 such Centers in the country with a maximum of3o beneficiaries each out of which 24 will be residential and remaining 6 will be for day care only as a respite to parents. Vocational training to the residents is provided under the scheme. There are 3362 beneficiaries under the scheme.
The scheme has been implemented on pilotbasisfor9yearwhich is going to complete by next year. Accordingly, funding for first lot of 70 centers will come to an end in year 2014.
Subsequently, in the next two years, funding for all the 119 centers will come to an end. In view of this, National Trust is in the process of making a Sustainability Plan of these centers.
Badhte Kadam (Mobile Disability Awareness Expedition)
Badhte Kadam is a Pan India discoverability Awareness Raising Campaign which is held every year since 2009 all over India by National Trust. The aim of Badhte Kadam is to raise awareness so as to bring about a change in the attitudes of public towards disability in the society
Gyan Prabha (Scholarship Scheme)
The scheme is to provide financial assistance for pursuing vocational training I professional courses leading to skill development and employment for Persons with Disabilities. The scheme was launched in 2008 and based on its operational experience.
National Depository of Legal Guardianship Certificates (NDLGC) and the online module of Legal Guardians
Section 14 of the National Trust Act provides for appointment of legal guardians by Local Level Committees which are constituted under section 13 of the Act. The legal guardian appointment certificates are important documents and are relied upon in several legal and administrative matters. This will also help in future to extend this concept to other certificates
– Like disability certificate, caste certificates, income certificates etc.
Mentors Training Program On Self Advocacy
National Trust has also started a new program for training Mentors on Self Advocacy. Two rounds of Mentors Training program held in Delhi in which all the coordinators of State Nodal Agency Center (SNAC) of National Trust were trained. All these Mentors will train persons with disabilities on Self Advocacy.
On-line Autism Information and Resource Center Portal
National Trust has developed an online Autism Information and Resources Center portal. It was launched by the humble minister of Social Justice & Empowerment on 04.09.2013. It is the result of a dream shared by many professionals, practitioners and officials of the Government of India to bring together all strategies, interventions and services available in our country.
The portal address is www. autismresourecenter. in
Need for Support under Samarth scheme among the above mentioned schemes, tenure of Samarth scheme is going to end in a year or two. The Samarth scheme is a residential scheme for providing long term and short term stay facility to persons with intellectual and developmental disabilities. The scheme gives preference to orphans and adult with disabilities who have no family support. At present, there are io6 functional Samarth centres in the country. Each centre has a capacity of 30 residents. The scheme started in 2005 for a period of nine years. The tenure of these Samarth projects is going to end in a year or two. In any case the last instalment is only 1o% of the total amount, so almost negligible.
As per the scheme guidelines these organizations were supposed to become self-sustainable after years of funding from NationalTrust and run the scheme on their own. But, as on date most of these organizations are finding it difficult to continue the project after stopping of grant from National Trust. The National Trust has developed Minimum Quality Standards for these facilities, which are attached. We would like to request corporate houses to ‘Adopt a Samarth’. This will be great support to the work of the National Trust.
Each Samarth Centre has maximum of 3o beneficiaries
Proposed cost of each resident for imonth = Rs. 6ooo (6000xl2 = 72000/- per head)
Insurance under Niramaya is enjoyed by more than one Lakh beneficiaries across the country who have Autism, Cerebral Palsy, Mental Retardation & Multiple Disabilities. Salient Features of NIRAMAYA Scheme are – Single premium across all ages. Same coverage irrespective of type of Disability or Age. All Pre-existing conditions covered. No pre-insurance medical tests. Pre and Post hospitalization expenses covered. Treatment can be taken from any hospital anywhere, and costs reimbursed. Available across the country except J&K. Premium for all BPL are being paid by the Government.
The National Trust, a Statutory Body was set up, to build support systems, safety nets and quality of life for people with disabilities. It runs a range of services and a helpline. For detailed information log on to our website or call our Helpline no -011-26466250, i8oo ii 68oo (Toll Free) Ravi Joseph a young soldier of the Indian Army was very happy when he was blessed with a baby boy in Oct 2007 But, only after a few hours of the birth of Anosh, they were shocked to know that he had Cerebral Palsy.
This affects motor function, due to damage to the brain. The child may have difficulty in rolling over, sitting, standing, walking and also in using his hands. The child needs good therapy and management. However in some cases surgery can also help.
Ravi and his wife Asha worked hard on Anosh’s therapy, and there was slow progress. When he went to visit his in—laws in Nagda near Ujjain, he visited a doctor who suggested surgery and intensive post-operative therapy. This he said may help Anosh to walk; the family could not afford this treatment.
The Niramaya Health Insurance was introduced to them by a proactive NGO in Nagda. This supported them both for the surgery and post operative therapy. National Trust Insurance scheme paid out Rs 60,000/- for Anosh’s treatment.
Niramaya was started when Health Insurance was not given to people with disabilities. It is a pioneering initiative to take care of the quality of life of people with high support needs, or who are traditionally labelled as severe or profoundly disabled.
Department of Disability Affairs
(Ministry of Social Justice & Empowerment, Government of India)
16B Bada Bazar Marg, Old Rajendra Nagar New Delhi
Website: www.the nationaltrust.in Ph: 011-43187880